This Girl’s a Keeper!

DAY 4…

I am blessed to have this wonderful woman in my life. There are few things better than to spend your life with someone you love. April is definitely the guiding force for me. She keeps me pointed in the right direction. She makes sure that I don’t close myself off from the world, that I don’t curl into a ball and hide from hard things. She brings laughter, exclamation, and bad foreign accents to my whisper quiet lifestyle. And now, she has been thrust into the role of caregiver, for a husband with a progressive disease. I think that I got the better end of this deal.

“…few things better than to spend your life with someone you love”

Eighteen months ago, I started experiencing changes in the way my body moved and felt. Over the next few months, I would start to lose feeling in my hands. Then came loss of dexterity, especially in my left hand, and a difference in my walk. I started to experience nightly painful leg cramping that would shoot me up out of bed. Tremors came next. First in my left hand, moving up my arm, then in my left leg. My left arm hangs by my side when I walk if I don’t pay attention to swinging it on purpose.

I have visited several specialists from head to toe. My Neurologist tested my blood (several times), ran MRI’s on my head and back (3), and did a spinal tap (they call it a lumbar puncture, maybe to make it sound nicer). She finally narrowed it down to a “Parkinsonism”. After she retired, and a wait of about 6 months to get in, I received an initial diagnosis of Atypical Parkinson’s, or more precise, Cortical-basal Degeneration. Joy. In January I will be getting a second (third) opinion from a Parkinson’s (Movement) specialist.

Cortical-basal Degeneration

I decided to start this blog, as well as an Instagram and Facebook page, to chronicle all of the ups and downs of living life with a progressive disease. Hopefully it will help me make sense of things as they happen to me. It will also give my loved ones a day to day update on my health and state of mind (scary). And, just possibly, it might provide someone else out there who either has a chronic illness or cares for someone who does, something to think about. It might even inspire by accident.

3 thoughts on “This Girl’s a Keeper!

  1. Our world has been rocked before and I imagine it will be rocked again. Together we are stronger. Together we can find joy in even THIS journey. This should be our quest❤️

  2. You Two make me Smile and feel good. So glad you reached out to me Brian! You are the one who got me to seriously do something about my Obesity. With your guidance I have lost 50 lbs. I Pray you both keep your positivity and strength Throughout this never ending Challenge. I wish I had perfect words to tell you how I really feel! Know you are in my prayers and my gratitude abounds!

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